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Hear about cutting-edge GNEM research with our expert panel.  Get clear, understandable insights plus have your questions answered.  Panel consists of Rich Horgan, Dr. Angela Lek, and Dr. Noah Weisleder.

Rebecca Schmitt received her PhD in Human Genetics from Virginia Commonwealth University in May of 2019, investigating genetics and environmental factors that influence Drosophila ethanol sedation. She subsequently started a postdoctoral position with Jason Doles, PhD at Mayo Clinic exploring hereditary myopathies. It was here where Rebecca first started learning and studying GNE myopathy and its causes. She is still continuing this work after the Doles lab moved to Indiana University in 2022.

Noah Weisleder received his B.S. in Biotechnology from Worcester Polytechnic Institute and a Ph.D. in Cell Biology from Baylor College of Medicine.

Prajakt Deotale, Digital Advisory Industry Sponsor at Microsoft

Amy Curran, NDF Patient Advocate Program Manager

Moderated by: Mona Patel, NDF Patient Advocate Program Manager & Equality, Diversity and Inclusion Specialist at Manchester Metropolitan University, UK

Dr. Mira Malcov, Head of PDG

Sarah Shira Emmons, MPH

Tasia Valenza, EMMY-Winning Voiceover Artist

Dr. Ehud Banne

Carol Gelbard, LCSW 

To change the subtitles to another language, follow these steps: In the bottom right corner of the video, click the CC icon to see subtitles appear, then click the gear icon, Subtitles/CC, Auto Translate, and then choose your language.