Logo of the GNEM Symposium Speaker Series, presented by The Neuromuscular Disease Foundation

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May 3, 2024

Exclusive Webinar on GNE Myopathy Treatments

Hear about cutting-edge GNEM research with our expert panel.  Get clear, understandable insights plus have your questions answered.  Panel consists of Rich Horgan, Dr. Angela Lek, and Dr. Noah Weisleder.

November 19, 2023

Exploring Genetic Changes and Cell Recycling in GNE Myopathy

Rebecca Schmitt received her PhD in Human Genetics from Virginia Commonwealth University in May of 2019, investigating genetics and environmental factors that influence Drosophila ethanol sedation. She subsequently started a postdoctoral position with Jason Doles, PhD at Mayo Clinic exploring hereditary myopathies. It was here where Rebecca first started learning and studying GNE myopathy and its causes. She is still continuing this work after the Doles lab moved to Indiana University in 2022.

November 12, 2023

A Discussion on NDF’s 2023 Awarded Grants

Noah Weisleder received his B.S. in Biotechnology from Worcester Polytechnic Institute and a Ph.D. in Cell Biology from Baylor College of Medicine.

September 24, 2023

Navigating Assistive Technology with Confidence

Prajakt Deotale, Digital Advisory Industry Sponsor at Microsoft

Amy Curran, NDF Patient Advocate Program Manager

Moderated by: Mona Patel, NDF Patient Advocate Program Manager & Equality, Diversity and Inclusion Specialist at Manchester Metropolitan University, UK

August 13, 2023

Empowering Choices: Navigating Genetic Counseling and IVF Solutions

Dr. Mira Malcov, Head of PDG

June 25th, 2023

Navigating GNEM Through Self-Care

Sarah Shira Emmons, MPH

April 30, 2023

Give Great Voice! The Art Of Confident Verbal Communication

Tasia Valenza, EMMY-Winning Voiceover Artist

March 21, 2023

GNE Genetics Testing In Israel

*This presentation is in Hebrew*

Dr. Ehud Banne

January 8, 2023

Regulating and Recharging Our Nervous System— Tools to Nurture Our Bodies and Our Minds

Carol Gelbard, LCSW 

To change the subtitles to another language, follow these steps: In the bottom right corner of the video, click the CC icon to see subtitles appear, then click the gear icon, Subtitles/CC, Auto Translate, and then choose your language.