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We work to enhance the quality of life for people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.

We work to enhance the quality of life for people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.

Our Virtual Learning Library provides recordings of our GNEM Speaker Series events, podcasts, and webinars and is an invaluable resource where you can find answers to many of your questions about GNE Myopathy and the work of NDF.

GNEM Learning Library
What is GNE Myopathy?
Are there treatments for GNE Myopathy?
How does NDF support patients?
Recently Diagnosed?

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