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We work to enhance the quality of life for people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.

We work to enhance the quality of life for people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.

We are here to support you. We have assembled a list of resources that we hope you will find helpful, educational, or entertaining.

COVID-19 Resources
What is GNE Myopathy?
Are there treatments for GNE Myopathy?
How does NDF support patients?
Recently Diagnosed?

Our impact at a glance:

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