NDF Ambassadors

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NDF Ambassadorsndf2022-02-08T11:59:19-08:00

Our NDF Ambassadors are a group of motivated, young professionals focused on spreading awareness of GNE Myopathy and promoting preconception genetic screening.

Our 2021 NDF Ambassadors:

Daniel Beroukhim (co-chair), Tatiana Broukhim (co-chair), Shawn Arianpour, Sogol Ashourpour, Ariel Kasheri, Daniel Khalili, Brian Levian, Chloe Makhani, Tiffany Mikail, Desiree Pakravan, Melody Pakravan, Eliot Saeedi, Kayla Soleimani, Amanda Solomon, Jason Taban

To learn about upcoming events or to contact us, visit us on Instagram or via e-mail

Click here to learn more on the importance of genetic screening.

Visit our learning library to view a webinar from our partners at JScreen about the importance of pre-conception genetic screening.

View Photo Gallery of Past Events

Follow us on Instagram

Please join us in wishing our Certified Patient Ad

Follow on Instagram

Stay up to date on our progress

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