Neuromuscular Disease Foundation Scientific Advisory Committee Update on 6SL
The Neuromuscular Disease Foundation Scientific Advisory Committee examined the peer reviewed research paper entitled “Pharmacokinetics and clinical efficacy of 6’-sialyllactose (6 SL) in patients [...]
29 February is Rare Disease Day
GNE Myopathy affects people around the globe. NDF continues to support patients and strive for an effective treatment for GNEM. During February, we want [...]
NDF 2023 Grant Updates
We work year-round to enhance the quality of life for those living with GNE Myopathy by funding critical research focused on treatments and a [...]
The Neuromuscular Disease Foundation Leads in Patient Resources and Grant Funding in Service of Rare Disease GNEM Patients Worldwide
Since our inception, NDF has delivered more than ten million dollars in grant funding to the world’s leading rare disease researchers, drug development pharmaceutical [...]
New Patient Care Partner Support Group Programs
The Neuromuscular Disease Foundation (NDF) is proud to offer a broad range of services, support programs and free resources to its global community of [...]
Is Your Confidence Affected by Your Disability?
Confidence is a make-it-or-break-it quality in life. It allows us to stretch our horizons, try new things, meet new people and visit new places. [...]
How Two Young Disability Inclusion Advocates Are Building a More Inclusive World, One Lesson at a Time
By Dana Corddry If you haven’t heard of Eva and Amaira Deotale before, it was only a matter of time. These two mini powerhouses [...]
Celebrating Female Scientific Achievement with One of Our Own: NDF Scientist Dr. Kelly Crowe Awarded $20K Grant and Named an Uplifting Athletes 2023 Young Investigator Draft Pick!
This Women’s Day, we’re proudly celebrating our own Dr. Kelly Crowe, a member of the NDF research team. While we could celebrate Dr. Crowe [...]
In-the-News: Suma Rao-Gupta, Izabella Tyszler and Navid Rachman to Join the Neuromuscular Disease Foundation (NDF) Board of Directors
The NDF board is pleased to welcome three new members: Suma Rao-Gupta, Izabella Tyszler and Navid Rachman. All three professionals bring a cumulative wealth [...]
Using Her Rare Disease Diagnosis to Fuel Patient Advocacy – Tara Voogel Steps into Her Role on The Board of The Neuromuscular Disease Foundation
"To be kind, compassionate, and of service so I may not... be ashamed to die until I have won some victory for humanity." - [...]
