The Neuromuscular Disease Foundation Leads in Patient Resources and Grant Funding in Service of Rare Disease GNEM Patients Worldwide
Since our inception, NDF has delivered more than ten million dollars in grant funding to the world’s leading rare disease researchers, drug development pharmaceutical [...]
New Patient Care Partner Support Group Programs
The Neuromuscular Disease Foundation (NDF) is proud to offer a broad range of services, support programs and free resources to its global community of [...]
Is Your Confidence Affected by Your Disability?
Confidence is a make-it-or-break-it quality in life. It allows us to stretch our horizons, try new things, meet new people and visit new places. [...]
How Two Young Disability Inclusion Advocates Are Building a More Inclusive World, One Lesson at a Time
By Dana Corddry If you haven’t heard of Eva and Amaira Deotale before, it was only a matter of time. These two mini powerhouses [...]
Celebrating Female Scientific Achievement with One of Our Own: NDF Scientist Dr. Kelly Crowe Awarded $20K Grant and Named an Uplifting Athletes 2023 Young Investigator Draft Pick!
This Women’s Day, we’re proudly celebrating our own Dr. Kelly Crowe, a member of the NDF research team. While we could celebrate Dr. Crowe [...]
In-the-News: Suma Rao-Gupta, Izabella Tyszler and Navid Rachman to Join the Neuromuscular Disease Foundation (NDF) Board of Directors
The NDF board is pleased to welcome three new members: Suma Rao-Gupta, Izabella Tyszler and Navid Rachman. All three professionals bring a cumulative wealth [...]
Using Her Rare Disease Diagnosis to Fuel Patient Advocacy – Tara Voogel Steps into Her Role on The Board of The Neuromuscular Disease Foundation
"To be kind, compassionate, and of service so I may not... be ashamed to die until I have won some victory for humanity." - [...]
Rare Disease Day 2023: A Celebration of The Promise for a More Equitable Society
Each year at the NDF, we take part in celebrating Rare Disease Day, an opportunity to advocate for rare diseases as a human rights [...]
‘I live a beautiful life’: What wheelchair users wish you knew – and what to stop asking
"What's wrong with you?" "How did this happen?" People in wheelchairs encounter those questions regularly – and want people to know they are not OK to [...]
Neuromuscular Disease Foundation’s Dr. Kelly Crowe Presented with $20,000 Research Grant from Uplifting Athletes
Dr. Kelly Crowe is among 10 rare disease researchers to be awarded a grant at Uplifting Athletes’ Sixth Annual Young Investigator Draft presented by [...]
