New Patient Care Partner Support Group Programs
The Neuromuscular Disease Foundation (NDF) is proud to offer a broad range of services, support programs and free resources to its global community of [...]
Is Your Confidence Affected by Your Disability?
Confidence is a make-it-or-break-it quality in life. It allows us to stretch our horizons, try new things, meet new people and visit new places. [...]
How Two Young Disability Inclusion Advocates Are Building a More Inclusive World, One Lesson at a Time
By Dana Corddry If you haven’t heard of Eva and Amaira Deotale before, it was only a matter of time. These two mini powerhouses [...]
Celebrating Female Scientific Achievement with One of Our Own: NDF Scientist Dr. Kelly Crowe Awarded $20K Grant and Named an Uplifting Athletes 2023 Young Investigator Draft Pick!
This Women’s Day, we’re proudly celebrating our own Dr. Kelly Crowe, a member of the NDF research team. While we could celebrate Dr. Crowe [...]
In-the-News: Suma Rao-Gupta, Izabella Tyszler and Navid Rachman to Join the Neuromuscular Disease Foundation (NDF) Board of Directors
The NDF board is pleased to welcome three new members: Suma Rao-Gupta, Izabella Tyszler and Navid Rachman. All three professionals bring a cumulative wealth [...]
Using Her Rare Disease Diagnosis to Fuel Patient Advocacy – Tara Voogel Steps into Her Role on The Board of The Neuromuscular Disease Foundation
"To be kind, compassionate, and of service so I may not... be ashamed to die until I have won some victory for humanity." - [...]
Rare Disease Day 2023: A Celebration of The Promise for a More Equitable Society
Each year at the NDF, we take part in celebrating Rare Disease Day, an opportunity to advocate for rare diseases as a human rights [...]
‘I live a beautiful life’: What wheelchair users wish you knew – and what to stop asking
"What's wrong with you?" "How did this happen?" People in wheelchairs encounter those questions regularly – and want people to know they are not OK to [...]
Neuromuscular Disease Foundation’s Dr. Kelly Crowe Presented with $20,000 Research Grant from Uplifting Athletes
Dr. Kelly Crowe is among 10 rare disease researchers to be awarded a grant at Uplifting Athletes’ Sixth Annual Young Investigator Draft presented by [...]
NDF’s Secret Weapon in Raising GNEM Awareness Is a Team of Motivated Young Professionals Who Are Leading the Way to A Healthier Tomorrow Through Genetic Screening Advocacy
The community of GNEM (GNE Myopathy) patients and families we are happy to support at NDF have long understood the unique challenges of advancing [...]
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