Our Certified Patient Advocates (CPAs) are dedicated GNE Myopathy patients around the world who assist us in our mission. These Advocates are leaders in the patient community and are committed to helping us in our efforts to bring programs that enhance the quality of lives of patients and families in their respective countries.
CPAs speak many languages and are therefore able to reach out to patients and potential patients to offer support and resources. These Advocates, with our support, also help us organize and host Patients’ Days in their countries.
Reach out to one of these dedicated advocates or contact us for more information.