Our Certified Patient Advocates (CPAs) are dedicated GNE Myopathy patients around the world who assist us in our mission. These Advocates are leaders in the patient community and are committed to helping us in our efforts to bring programs that enhance the quality of lives of patients and families in their respective countries.

CPAs speak many languages and are therefore able to reach out to patients and potential patients to offer support and resources. These Advocates, with our support, also help us organize and host Patients’ Days in their countries.

Reach out to one of these dedicated advocates or contact us for more information.

North America

Photograph of Amy

Amy Curran

Patient Advocacy Program Manager

Eastern Region

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Photograph of Imad

Imad Kazim

New England

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Photograph of Tara

Tara Voogel

Patient Advocacy Program Manager

Western Region

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Melissa Branch

Southeast Region

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Al Stork

Midwest Region

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Africa

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Rose Okama

Ivory Coast

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Asia

Ashutosh Verma

India

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Photograph of Kelly

Kelly Ma

Taiwan/China

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Sabeen Faisal

Pakistan

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Osamu Sasaki

Japan

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Kyeong Hwa Ryu

South Korea

Europe

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Mona Patel

United Kingdom – Northern Region

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Valenee Gosine

United Kingdom – Southern Region

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Photograph of Vaneesha and Abajee

Vaneesha Mohadawo & Abajee Dharmajee

France

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Saskia Melches

Germany

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Leif Roth

Switzerland

Middle East

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Abdullah Al Shamrani

Saudi Arabia

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Maya Davidovich Cohen

Israel

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Guy Ratson

Israel

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Photograph of Dr. Suleyman Kus

Suleyman Kus

Turkey

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Photograph of Roberta

Roberta Cirisyan

Turkey & Greece

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