October 13, 2024
Huddle on Emergency Preparedness and Assistive Devices
May 3, 2024
Exclusive Webinar on GNE Myopathy Treatments
Hear about cutting-edge GNEM research with our expert panel. Get clear, understandable insights plus have your questions answered. Panel consists of Rich Horgan, Dr. Angela Lek, and Dr. Noah Weisleder.
November 19, 2023
Exploring Genetic Changes and Cell Recycling in GNE Myopathy
Rebecca Schmitt received her PhD in Human Genetics from Virginia Commonwealth University in May of 2019, investigating genetics and environmental factors that influence Drosophila ethanol sedation. She subsequently started a postdoctoral position with Jason Doles, PhD at Mayo Clinic exploring hereditary myopathies. It was here where Rebecca first started learning and studying GNE myopathy and its causes. She is still continuing this work after the Doles lab moved to Indiana University in 2022.
November 12, 2023
A Discussion on NDF’s 2023 Awarded Grants
Noah Weisleder received his B.S. in Biotechnology from Worcester Polytechnic Institute and a Ph.D. in Cell Biology from Baylor College of Medicine.
September 24, 2023
Navigating Assistive Technology with Confidence
Prajakt Deotale, Digital Advisory Industry Sponsor at Microsoft
Amy Curran, NDF Patient Advocate Program Manager
Moderated by: Mona Patel, NDF Patient Advocate Program Manager & Equality, Diversity and Inclusion Specialist at Manchester Metropolitan University, UK
August 13, 2023
Empowering Choices: Navigating Genetic Counseling and IVF Solutions
Dr. Mira Malcov, Head of PDG
April 30, 2023
Give Great Voice! The Art Of Confident Verbal Communication
Tasia Valenza, EMMY-Winning Voiceover Artist
March 21, 2023
GNE Genetics Testing In Israel
*This presentation is in Hebrew*
Dr. Ehud Banne
January 8, 2023
Regulating and Recharging Our Nervous System— Tools to Nurture Our Bodies and Our Minds
Carol Gelbard, LCSW
To change the subtitles to another language, follow these steps: In the bottom right corner of the video, click the CC icon to see subtitles appear, then click the gear icon, Subtitles/CC, Auto Translate, and then choose your language.
