Why Donate to Neuromuscular Disease Foundation (NDF)?
We want to send our sincerest thanks to all of our generous donors, sponsors, and volunteers who support the Neuromuscular Disease Foundation (NDF), so that we can continue to provide world-class research, studies, grants, wellness, patient resources, scientific symposium, and so much more, to the neuromuscular disease community. To you, we say “Thank You!”.
Every moment matters. Whether it is one day less for a patient struggling with an undetermined diagnosis, one hour of relief for a patient in our Wellness Clinic, or bonding with friends during a support group – these moments are beyond any price. We at NDF believe in an effective nonprofit culture that cultivates wellness from the inside out, extending to the patients, families, and advocates whom we support. GNE Myopathy (GNEM) is a complex disease that even the most highly trained medical practitioners sometimes still struggle to diagnose. This rare genetic disease takes its toll on our loved ones slowly and persistently, and the one thing that we observe becomes the most precious, the thing that we learn is so limited – is time. Time with our loved ones. Time saved by genetic screening and early diagnosis. Time was saved by increasing public education about GNE Myopathy (GNEM) and all neuromuscular diseases.
The sooner that NDF-funded Scientific research can secure a GNEM / HIBM cure and improved treatments for the pain management of GNE Myopathy symptoms – the sooner the entire Neuromuscular Disease community of patients, advocates, and caring loved ones can breathe a collective sigh of relief.