Neuromuscular Disease Foundation needs your financial support this year.

We can only progress in our scientific efforts to find treatments and a cure for GNE Myopathy thanks to the generosity of our donors. All our scientific research, and patient programs, including our patient health clinics, emotional wellness support, and monthly virtual sessions, also rely on donations. Everything we do is possible thanks to people like you who believe in supporting GNEM patients worldwide and ending this rare disease once and for all.

Why Donate to Neuromuscular Disease Foundation (NDF)?

Nowadays, there are so many exceptional causes you can choose from when making a tax-deductible charitable contribution. We want to send our sincerest thanks to all of our generous donors, sponsors, and volunteers who keep the Neuromuscular Disease Foundation (NDF) running so that we can continue to provide world-class research, studies, grants, wellness, patient resources, scientific symposium, and fundraising events, and so much more, to the global neuromuscular disease community. To you, we say “Thank You!”.

We at NDF believe in an effective nonprofit culture that cultivates wellness from the inside out, extending to the patients, families, and advocates whom we support. GNE Myopathy (GNEM) is a complex disease that even the most highly trained medical practitioners sometimes still struggle to diagnose. This rare genetic disease takes its toll on our loved ones slowly and persistently, and the one thing that we observe becomes the most precious, the thing that we learn is so limited – is time. Time with our loved ones. Time saved by genetic screening and early diagnosis. Time was saved by increasing public education about GNE Myopathy (GNEM) and all neuromuscular diseases. Every moment matters. Whether it is one day less for a patient struggling with an undetermined diagnosis, one hour of relief for a patient in our Wellness Clinic, or bonding with friends during a support group – these moments are beyond any price.

The sooner that NDF-funded Scientific research can secure a GNEM / HIBM cure and improved treatments for the pain management of GNE Myopathy symptoms – the sooner the entire Neuromuscular Disease community of patients, advocates, and caring loved ones can breathe a collective sigh of relief.

How you can help:

Other Ways To Help

  • Donor Advised Funds
  • Planned Giving
  • Give Stocks and Funds
  • Workplace Giving

Please call our office at 310-721-1605 if you would like to donate using these methods, and THANK YOU!!

Donate your Birthday or Other Special Occasion to Help our Cause.

Set up a fundraiser through Facebook for NDF during your birthday month. Ask your friends to donate to a cause you love as a gift to you!

Just follow the simple steps below:

  1. Sign into Facebook
  2. Go to:
  3. Click “Select Nonprofit”
  4. Type in: Neuromuscular Disease Foundation
  5. Type in the amount you want to raise & the day the campaign should end
  6. Add title & “Why you are raising money”
  7. Choose a cover image
  8. Invite friends/share to your profile

Watch as your friends and family help you help us by donating in your honor!

Thank you for donating to the Neuromuscular Disease Foundation.

We know that when you give to help others, you have many choices. So many ways you can devote not only your money but your time. We are here for the long- haul; we are determined to find the cure to GNE Myopathy (GNEM) / HIBM through continued scientific research and breakthroughs in new treatments in gene therapy.

If you prefer to mail in your donation, please download this form and send to the address listed.

Our Mailing Address:

269 S. Beverly Drive, Suite 1206
Beverly Hills, CA 90212

Our Contact Information:

(310) 721-1605

Our EIN:


Thank you for supporting the GNE Myopathy community with your donation to NDF!