Skip to content
LinkedInFacebookTwitterYouTubeInstagram
Neuromuscular Disease Foundation Logo
  • Programs
    • Patient & Carrier Advocacy
      • Patient Resources
      • Support Groups
    • Awareness & Education
      • What is GNE Myopathy?
      • What are the available treatments?
      • Recently Diagnosed?
      • Genetic Screening
    • GNE Myopathy Clinics
      • Emotional Wellness Clinic
      • Multidisciplinary Clinic
    • Learning Library
      • 2023 Speaker Series
      • Podcasts
      • Patient Stories
      • Additional Resources
      • Archived
  • Research
    • International Gene Therapy Development Program (IGTDP)
    • Current NDF-Funded Studies
    • Potential Treatments for GNE Myopathy
    • GNEM Related Publications
    • Grant Applications
    • Diagnostic Aids & Current Trials
  • Get Involved
    • Donate
    • Monthly Giving
    • Corporate Partnership
    • Volunteer Time
  • News
  • Events
    • Upcoming Events
    • Past Events
  • About
    • Groups
      • Certified Patient Advocates
      • NDF Ambassadors
      • NDF United Youth
    • Leadership
      • Our Team
      • Scientific Advisors
    • Organizational Information
    • Financials
    • Alliances
    • 2021 Annual Report
  • Contact
  • Donate Now

Test Page

Test Page

Home » Programs » Common Questions » Test Page
Test Pagehighnoon_ndf2021-07-02T08:03:56-07:00

Follow us on Instagram

We are incredibly thrilled to invite you to the up We are incredibly thrilled to invite you to the upcoming Neuromuscular Disease Foundation Speaker Series event...
Are you excited to learn about the latest and greatest NDF awarded grants? If so, join us for a special presentation on October 29th at 9:00 a.m. PT. 
📅 Date: Sunday, October 29th, 2023
⏰ Time:9am PT
🌐 Location: Zoom link will be provided upon registration
This presentation will be a unique opportunity to hear directly from NDF representatives about the innovative and impactful projects that are being funded by the organization🤔🧬Whether you're a grant writer, project manager, or simply interested in learning more about NDF's work, this presentation is for you.
 We'll also have a Q&A session at the end of the presentation, so you can get your questions answered by the experts! 🚀💡
Don’t miss out on this incredible opportunity to expand your knowledge and gain insights into these transformative fields.
📢Register now to secure your virtual seat: LINK IN BIO 2023 Speaker Series
This is open to the public so spread the word and invite your friends and colleague's whole might be interested.

#NDF #AwardGrant #ScientificAdvancements
#advisor
#GNEM 
#Symposium
Check out our latest Speaker Series, where you can Check out our latest Speaker Series, where you can discover how assistive tech can enhance independence and open doors to new opportunities. Our expert speakers will guide you through the ins and outs of various assistive technologies. 
Check the link in our bio to watch!
Congratulations to our Certified Patient Advocate Congratulations to our Certified Patient Advocate Abdullah and the entire team from the Kingdom of Saudi Arabia for their hard work and dedication in advancing the rights of individuals with disabilities. The approval of this new legislation is indeed a significant step toward implementing the Convention on the Rights of Persons with Disabilities and ensuring equal opportunities and non-discrimination for people with disabilities. It's heartening to see a commitment to considering the needs of individuals with disabilities in all aspects of government and non-government initiatives. This is a commendable effort in promoting inclusivity and equality for all.
https://x.com/UN_SaudiArabia/status/1703742720257282210?s=20
We’re incredibly excited to share the following We’re incredibly excited to share the following Neuromuscular Disease Foundation Speaker Series event with you…

Join us for a free talk and Q&A hosted by the NDF unveiling the helpful features of assistive Technology (AT) and the empowering and transformative impact it could have in your workplace and on your daily life.

Title: “Navigating Assistive Technology with Confidence”.
Date/Time: Sunday 24 September 2023 9 a.m. PT
Via: Zoom.

The session aims to:
 Improve confidence and knowledge on how to customise accessibility settings on everyday devices.
 Ensure digital inclusion and accessibility for everyone, regardless of abilities.
 Highlight the importance of keeping informed about AT advancements to access better tools. 
🕘 Mark your calendars for an insightful session filled with knowledge and practical tips. Everyone is welcome! 
Please register to join us by clicking on this link: Speaker Series: Navigating Assistive Technology with Confidence:  https://curegnem.org/event/navigating-assistive-technology-with-confidence/
Follow on Instagram

Stay up to date on our progress

Sign up to receive our quarterly newsletter.

Sign Up
Logo of NDF

Los Angeles
269 S. Beverly Drive, Suite 1206
Beverly Hills, CA 90212
(310) 721-1605

  • ABOUT
  • Leadership
  • Events
  • Research
  • PATIENT RESOURCES
  • Programs
  • Speaker Series
  • What is GNE Myopathy
  • WAYS TO GIVE
  • Single Donation
  • Corporate Sponsorship
  • Monthly Giving

NDF’s goal is to provide an accessible website to all. While we work to remove barriers that prevent persons with disabilities from accessing information made available on our website, we offer phone support in several languages. Please call 1-(310) 721-1605 or click here to request a call back.

The Neuromuscular Disease Foundation is a 501(c)(3) nonprofit organization
EIN: 06-1789643

Privacy Policy • Terms & Conditions • Accessibility

Please be advised that content within the NDF website includes a compilation of material from differing sources. NDF does not provide medical advice nor is NDF a medical provider. This content is intended for informational purposes. Please contact your health care provider(s) for your specific healthcare needs. The NDF website contains links to external websites that are not  in any way affiliated with NDF. NDF suggests that you review the terms of service and privacy policies of these websites before using them. Please note that NDF does not guarantee the accuracy, relevance, timeliness, or completeness of any information on these external websites.
 
 

Page load link
We use cookies on our website to give you the most relevant experience by remembering your preferences and repeat visits. By clicking “Accept”, you consent to the use of ALL the cookies. Read More
.
Cookie settingsACCEPT
Manage consent

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. These cookies ensure basic functionalities and security features of the website, anonymously.
CookieDurationDescription
cookielawinfo-checbox-analytics11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Analytics".
cookielawinfo-checbox-functional11 monthsThe cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional".
cookielawinfo-checbox-others11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Other.
cookielawinfo-checkbox-necessary11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookies is used to store the user consent for the cookies in the category "Necessary".
cookielawinfo-checkbox-performance11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Performance".
csrftoken1 yearThis cookie is associated with Django web development platform for python. Used to help protect the website against Cross-Site Request Forgery attacks
viewed_cookie_policy11 monthsThe cookie is set by the GDPR Cookie Consent plugin and is used to store whether or not user has consented to the use of cookies. It does not store any personal data.
Functional
Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features.
CookieDurationDescription
bcookie2 yearsThis cookie is set by LinkedIn. The purpose of the cookie is to enable LinkedIn functionalities on the page.
langsessionThis cookie is used to store the language preferences of a user to serve up content in that stored language the next time user visits the website.
lidc1 dayThis cookie is set by LinkedIn. Used for routing.
sp_landing1 dayThis cookie is set by Spotify. This cookie is used to implement audio content from Spotify on the website. It also helps in collecting information on user interaction with this audio content.
sp_t1 yearThis cookie is set by Spotify. This cookie is used to implement audio content from Spotify on the website. It also helps in collecting information on user interaction with this audio content.
Analytics
Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics the number of visitors, bounce rate, traffic source, etc.
CookieDurationDescription
_ga2 yearsThis cookie is set by Google Analytics. The cookie is used to calculate visitor, session, campaign data and keep track of site usage for the site's analytics report. The cookies store information anonymously and assign a randomly generated number to identify unique visitors.
_ga_07R2BSRHMW2 yearsThis cookie is set by Google Analytics.
CONSENT16 years 5 monthsThese cookies are set by embedded YouTube videos. They register anonymous statistical data on for example how many times the video is displayed and what settings are used for playback. No sensitive data is collected unless you log in to your google account, in that case your choices are linked with your account, for example if you click “like” on a video.
vuid2 yearsThis cookie is set by Vimeo. This cookie is used by Vimeo to collect tracking information. It sets a unique ID to embed videos to the website.
Advertisement
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
CookieDurationDescription
__putma20 yearsThis cookie is set by Prezi.com. It is used to target ads based on behavioral profiling and geographical location.
AnalyticsSyncHistory1 monthNo description
bscookie2 yearsThis cookie is a browser ID cookie set by LinkedIn share buttons and ad tags.
fr3 monthsThe cookie is set by Facebook. It is used to show relevant advertisements to users and measure and improve the advertisements. The cookie also tracks the behavior of the user across the web on sites that have Facebook pixel or Facebook social plugin.
IDE1 year 24 daysThis cookie is set by Google. It is used by Google DoubleClick and stores information about how the user uses the website and any other advertisement before visiting the website. This is used to present users with ads that are relevant to them according to the user profile.
li_gc2 yearsNo description
oo5 years 5 daysThis cookie is set by AddThis. This cookie is used for targeted advertising. It helps in knowing about the users that visit their webpages.
test_cookie15 minutesThis cookie is set by Google. It is used by Google DoubleClick to determine if the user's browser supports cookies.
UserMatchHistory1 monthThis cookie is set by Linkedin - Used to track visitors on multiple websites, in order to present relevant advertisement based on the visitor's preferences.
VISITOR_INFO1_LIVE5 months 27 daysThis cookie is set by Youtube. Used to track the information of the embedded YouTube videos on a website.
YSCsessionThis cookies is set by Youtube and is used to track the views of embedded videos.
yt-remote-connected-devicesneverThese cookies are set by embedded YouTube videos.
yt-remote-device-idneverThese cookies are set by embedded YouTube videos.
yt.innertube::nextIdneverThese cookies are set by embedded YouTube videos.
yt.innertube::requestsneverThese cookies are set by embedded YouTube videos.
Others
Other uncategorized cookies are those that are being analyzed and have not been classified into a category as yet.
CookieDurationDescription
_ptref1 dayNo description available.
AnalyticsSyncHistory1 monthNo description
glassbox-session-id30 minutesThis cookie is set by Prezi.com
li_gc2 yearsNo description
loglevelneverNo description available.
UserMatchHistory1 monthThis cookie is set by Linkedin - Used to track visitors on multiple websites, in order to present relevant advertisement based on the visitor's preferences.
SAVE & ACCEPT
Powered by CookieYes Logo