Stephanie Wood

Hello, my name is Stephanie Wood.  I was an administrative assistant for 27 years and have recently retired.  I started my career at a camp for children with special needs.  I am married to my best friend, Scott, and we love spending as much time outside as we can.  I love to read, swim and create art and crafts.  When I was age 30 I was diagnosed with GNE along with my 3 siblings.  I am now 49 and still trying to live a full life.  I have decided since retiring to begin a new path in advocacy work for GNE patients as well as helping others through social media to find products that help with navigating a disability.