Rachel Leib, Author at Neuromuscular Disease Foundation

About Rachel Leib

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So far Rachel Leib has created 33 blog entries.

NDF’s Research Program (IGTDP) Moves Closer to a Cure for GNE Myopathy (GNEM)

Rachel Leib2022-09-12T10:47:14-07:00September 9, 2022|

Family Planning? Have You Considered Genetic Screening?

Rachel Leib2022-09-09T15:58:01-07:00August 22, 2022|

Life with GNEM: Voices from around the World Lift the Veil on the Patient Experience – Part 2

Rachel Leib2022-08-17T12:40:25-07:00August 17, 2022|

Media Messaging on Inter-abled Relationships: What Are We Saying to The Disabled Community?

Rachel Leib2022-07-25T12:03:49-07:00July 24, 2022|

Life with GNEM: Voices from around the World Lift the Veil on the Patient Experience – Part 1

Rachel Leib2022-08-17T12:38:33-07:00July 14, 2022|

Breaking News for Rare Disease Patients – NDF among 85 Rare Disease Advocacy Groups Urging Senate to Include RARE Act in New Legislation!

Rachel Leib2022-07-04T01:18:42-07:00June 24, 2022|

Consciously Shifting the Dynamic of Patient Storytelling

Rachel Leib2022-07-04T01:18:14-07:00June 2, 2022|

Sure, You’ve Heard About GNEM. But Do You Know About the Bulgarian Variant?

Rachel Leib2022-07-04T01:17:34-07:00May 26, 2022|

GNE Myopathy – Will Today’s Patients See a Treatment That Will End GNEM in Our Lifetime?

Rachel Leib2022-05-18T18:03:56-07:00May 18, 2022|

Motherhood Reflections: Exploring Our Journeys & Fostering Emotional Wellness For Ourselves & Our Families With Neuromuscular Disease Foundation’s Emotional Wellness Director Carol Gelbard, LCSW

Rachel Leib2022-05-05T11:16:09-07:00May 4, 2022|

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