Sure, You’ve Heard About GNEM. But Do You Know About the Bulgarian Variant? Rachel Leib2022-05-26T15:02:20-07:00May 26, 2022|
GNE Myopathy – Will Today’s Patients See a Treatment That Will End GNEM in Our Lifetime? Rachel Leib2022-05-18T18:03:56-07:00May 18, 2022|
Motherhood Reflections: Exploring Our Journeys & Fostering Emotional Wellness For Ourselves & Our Families With Neuromuscular Disease Foundation’s Emotional Wellness Director Carol Gelbard, LCSW Rachel Leib2022-05-05T11:16:09-07:00May 4, 2022|
It’s A Marathon, Not A Sprint – Why Is This Ultra Rare Disease So Difficult to Diagnose? Rachel Leib2022-04-05T10:41:02-07:00April 5, 2022|
How The NDF Maintains Transparency with Patients & Donors Rachel Leib2022-03-31T09:35:14-07:00March 30, 2022|
The NDF Welcomes Geoffrey M. Gee, Esq. as Newly Appointed Executive Director Rachel Leib2022-03-07T11:32:18-08:00March 7, 2022|
Rare Leader: Geoffrey Gee, Executive Director, Neuromuscular Disease Foundation Rachel Leib2022-03-02T14:55:11-08:00March 2, 2022|