Rachel Leib, Author at Neuromuscular Disease Foundation

About Rachel Leib

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So far Rachel Leib has created 26 blog entries.

Sure, You’ve Heard About GNEM. But Do You Know About the Bulgarian Variant?

Rachel Leib2022-05-26T15:02:20-07:00May 26, 2022|

GNE Myopathy – Will Today’s Patients See a Treatment That Will End GNEM in Our Lifetime?

Rachel Leib2022-05-18T18:03:56-07:00May 18, 2022|

Motherhood Reflections: Exploring Our Journeys & Fostering Emotional Wellness For Ourselves & Our Families With Neuromuscular Disease Foundation’s Emotional Wellness Director Carol Gelbard, LCSW

Rachel Leib2022-05-05T11:16:09-07:00May 4, 2022|

What is gene therapy?

Rachel Leib2022-04-19T07:57:03-07:00April 14, 2022|

Seeing Clearly: The State of NDF

Rachel Leib2022-04-09T22:39:34-07:00April 9, 2022|

It’s A Marathon, Not A Sprint – Why Is This Ultra Rare Disease So Difficult to Diagnose?

Rachel Leib2022-04-05T10:41:02-07:00April 5, 2022|

How The NDF Maintains Transparency with Patients & Donors

Rachel Leib2022-03-31T09:35:14-07:00March 30, 2022|

What Are The Most Common Neuromuscular Diseases?

Rachel Leib2022-03-14T15:02:46-07:00March 11, 2022|

The NDF Welcomes Geoffrey M. Gee, Esq. as Newly Appointed Executive Director

Rachel Leib2022-03-07T11:32:18-08:00March 7, 2022|

Rare Leader: Geoffrey Gee, Executive Director, Neuromuscular Disease Foundation

Rachel Leib2022-03-02T14:55:11-08:00March 2, 2022|

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