2019 Letter of Acknowledgment from National Human Genome Resarch Institute, NIH
In 2019, NDF awarded funds to the NHGRI at NIH to support GNE Myopathy research. Read their letter of acknowledgment and appreciation here [PDF]. [...]
Neuromuscular Disease Foundation Earns 2019 GuideStar Platinum Seal of Transparency
Neuromuscular Disease Foundation (NDF) is proud to announce it has earned a 2019 Platinum Seal of Transparency with GuideStar, the highest level of transparency [...]
Neuromuscular Disease Foundation Announces $700K in Awards for GNE Myopathy (HIBM) Research & Programs
Neuromuscular Disease Foundation (NDF) is pleased to announce its GNEM-related research projects selected for funding in 2019. Recipients include Hadassah Medical Center, Yale University, and [...]
7 Ways To Support Those with GNE Myopathy on Rare Disease Day, February 28th
On Thursday, February 28, 2019, the Neuromuscular Disease Foundation (NDF) will take part in #RareDiseaseDay, a global movement to raise awareness for Rare Diseases. [...]
Neuromuscular Disease Foundation Announces Monthly Patient HUDDLEs for Those Affected by GNEM
Online Cognitive Health & Well-Being Support Group is Moderated by Patients for Patients Neuromuscular Disease Foundation (NDF) is pleased to announce the launch of [...]
Rare Disease Foundation takes on 2.5 Million challenge grant to fund Gene Therapy
The Neuromuscular Disease Foundation is awarded a 2.5 Million matching grant from a private foundation towards gene therapy and its necessary studies as a [...]
Neuromuscular Disease Foundation (NDF) Launches Whole Genome Sequencing Research for Rare Muscle Disease
NDF and PerkinElmer to collaborate on a deeper look at GNE Myopathy The Neuromuscular Disease Foundation (NDF) - the world's leading nonprofit organization focused [...]
“Breaking Glass” – Cara’s Story
Get an up-close glimpse into the life of GNEM Patient and humanitarian Cara Elizabeth Yar Kahn in this compelling video that aired on MSNBC. [...]
Lalé Welsh Appointed New Executive Director of The Neuromuscular Disease Foundation
The Quest to Cure a Rare Muscle Disease (HIBM) Just Got More Serious The Neuromuscular Disease Foundation (NDF) has announced the appointment of Lalé [...]
