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So far ndf has created 28 blog entries.

Annual NDF Gala Yields Remarkable Results

ndf2021-05-17T07:41:29-07:00November 19, 2019|

NDF Announces All-Star Impact Winners

ndf2021-05-17T07:41:29-07:00November 1, 2019|

  • Young man sitting at table

“I choose to Focus on What I Can do, Not on What I Can’t” – Rushabh’s Story

ndf2022-02-08T12:56:02-08:00July 10, 2019|

From “Walk my Life to Drive my Life” – Saskia’s Story

ndf2022-02-08T12:57:43-08:00July 1, 2019|

“GNE Myopathy: Why it is a Bad Dream” – Shilpe’s Story

ndf2022-02-08T13:01:08-08:00June 25, 2019|

  • Photograph of Mona

“From Shame to Strength” – Mona’s Story

ndf2021-05-17T07:41:29-07:00June 5, 2019|

Neuromuscular Disease Foundation’s 6th Annual Symposium on GNE Myopathy Comes to Tel Aviv, Israel

ndf2021-07-09T14:08:13-07:00May 22, 2019|

Neuromuscular Disease Foundation’s 6th Annual Symposium on GNE Myopathy in Philadelphia: Educational Research and Biotech Presentations, Sample Collections, and More

ndf2021-07-09T14:12:13-07:00May 15, 2019|

Neuromuscular Disease Foundation’s 6th Annual Symposium on GNE Myopathy Expands to More Cities Worldwide

ndf2021-07-09T14:07:07-07:00April 9, 2019|

2019 Letter of Acknowledgment from National Human Genome Resarch Institute, NIH

ndf2021-05-17T07:41:29-07:00April 5, 2019|

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The Neuromuscular Disease Foundation is pleased to The Neuromuscular Disease Foundation is pleased to present a live presentation and question & answer session:

"Visualizing Sialic Acid as a Biomarker for GNE Gene Therapy" 

Presented by Dr. Kelly Crowe.

Dr. Kelly Crowe is an assistant professor in the Department of Biology. She holds a Ph.D. in Molecular, Cellular, and Developmental Biology from The Ohio State University, as well as an M.S. in Biology from Missouri State University and a B.A. in Biology and Psychology from Drury University. Her research interests include utilization of cell culture models to understand physiological processes relevant to muscle diseases such as GNE Myopathy. Dr. Crowe enjoys working with students to develop science outreach programs with the goal of making biology accessible and engaging to the public.

➡️ May 29th, 2022
➡️9 am PT/12 pm EST
➡️RSVP here: https://NDF.ticketspice.com/2022-ndf-gnem-speaker-series-kelly-crowe 

#ndf #neuromusculardisease #gnem #gnemyopathy #speakerseries #kellycrowe #drkellycrowe
We work to enhance the quality of life for those l We work to enhance the quality of life for those living with GNE Myopathy by funding critical research focused on treatments and a cure through The International Gene Therapy Development Program (IGTDP) and by advocacy, education and outreach.

The majority of our patient programs are available to our global community. 

We have patients and team members in more than 50 countries at the moment. 

Our website is available is several languages. 

We care about you, no matter where you are located. 🌎💙

#patient #gnempatient #myopathy #ndf #gnemyopathy #gnem #neuromusculardisease #GNEM
GNE Myopathy – Will Today’s Patients See a Tre GNE Myopathy – Will Today’s Patients See a Treatment That Will End GNEM in Our Lifetime?

➡️ read it here: https://www.biospace.com/article/gne-myopathy-will-today-s-patients-see-a-treatment-that-will-end-gnem-in-our-lifetime-/

#patient #gnempatient #myopathy #ndf #gnemyopathy #gnem #neuromusculardisease #GNEM
Please join us in wishing our Patient Advocate Pro Please join us in wishing our Patient Advocate Program Manager Amy from the Eastern Region U.S.A.. a very happy birthday.
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