2020 GNE Myopathy Speaker Series

In order to keep our GNE Myopathy community educated and aware of our scientific progress during the COVID-19 pandemic, we pivoted our in-person Symposia to a weekly, online, live Symposium Speaker Series. Over the course of five months, we created over 20 hours of  important, relevant and educational content, presented by leading scientists and industry professionals which are now all available to view, on demand, in our video library.

To view video recordings of each of these 2020 Speaker Series events, click here

Prior to 2020, our Annual Symposia served as an opportunity for leading scientists, industry professionals, as well as patients and their family members to meet and collaborate.  These events allow for education between scientists about the disease and are largely credited for creating collaboration among scientists, many of whom, were not working together just a few years ago. The expedites scientific growth, while creating an opportunity for patients and their family members to learn about the disease and resources available to them, while also giving them the rare opportunity to interact with top scientists working toward a potential cure.

To view video recordings of presentations made during our 2019 6th Annual Symposium click here.

To view video recordings of presentations made during our 2018 5th Annual Symposium click here.