August 27, 2021
Occupational or Physical Therapy: What’s the difference? How therapy helps with individual challenges!
Douglas Scott
August 20, 2021
Translational GNE Myopathy Research in Cell Models
Katherine Koczwara
August 13, 2021
Mind & Metabolism: Learning to Make your Brain and your Food Work for You
Sogol Ash, MS
August 6, 2021
GNE Myopathy International Patient Power Panel: “Ask Us Anything”
Maya Davidovich Cohen, Mona Patel, Roberta Cirisyan, Sabeen Faisal, Sean Henry, Dr. Suleyman Kus, Tara Voogel, and Valenee Gosine
July 30, 2021
Update on Model Systems for GNE Myopathy
Dr. Stella Mitrani-Rosenbaum
For this presentation in HEBREW click here
July 23, 2021
Managing Re-Entry Anxiety as we Gradually Emerge from the Global Pandemic
Dr. Jen Yashari & NDF Emotional Wellness Director, Carol Gelbard, LCSW
July 16, 2021
Practical Tips, Devices and Gadgets to Help Make Life with Neuromuscular Disease Easier
Amy Curran & Tara Voogel
July 9, 2021
Mindfulness and Holistic Medicine for GNEM Patients: Steps toward a Happier and More Fulfilling Life
Dr. Sepideh Tabibian
This presentation includes a 6 minute guided meditation.
July 2, 2021
Accelerating the Relay From the Patient Registry to Clinical Trials to Long-Term Follow-ups & Back
Harsha Rajasimha, MS, Ph.D
June 18, 2021
Evaluating GNE Myopathy Gene Therapy: Movement towards a Biomarker
Dr. Kelly Crowe
June 11, 2021
Engineering a Gene Therapy for Monogenic Rare Disease
Rich Horgan
To change the subtitles to another language, follow these steps: In the bottom right corner of the video, click the CC icon to see subtitles appear, then click the gear icon, Subtitles/CC, Auto Translate, and then choose your language.
Warm thank you to our corporate sponsor the Rotary Club, Beverly Hills
