Logo of the GNEM Symposium Speaker Series, presented by The Neuromuscular Disease Foundation

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2021 | 2020

August 27, 2021

Occupational or Physical Therapy: What’s the difference? How therapy helps with individual challenges!

Douglas Scott

August 20, 2021

Translational GNE Myopathy Research in Cell Models 

Katherine Koczwara

August 13, 2021

Mind & Metabolism: Learning to Make your Brain and your Food Work for You

Sogol Ash, MS

August 6, 2021

GNE Myopathy International Patient Power Panel: “Ask Us Anything”

Maya Davidovich Cohen, Mona Patel, Roberta Cirisyan, Sabeen Faisal, Sean Henry, Dr. Suleyman Kus, Tara Voogel, and Valenee Gosine

July 30, 2021

Update on Model Systems for GNE Myopathy

Dr. Stella Mitrani-Rosenbaum

July 23, 2021

Managing Re-Entry Anxiety as we Gradually Emerge from the Global Pandemic

Dr. Jen Yashari & NDF Emotional Wellness Director, Carol Gelbard, LCSW

July 16, 2021

Practical Tips, Devices and Gadgets to Help Make Life with Neuromuscular Disease Easier

Amy Curran & Tara Voogel

July 9, 2021

Mindfulness and Holistic Medicine for GNEM Patients: Steps toward a Happier and More Fulfilling Life

Dr. Sepideh Tabibian

This presentation includes a 6 minute guided meditation.

July 2, 2021

Accelerating the Relay From the Patient Registry to Clinical Trials to Long-Term Follow-ups & Back

Harsha Rajasimha, MS, Ph.D

June 25, 2021

Demystifying the Gene Therapy Process

Keith Sutton, PhD

June 18, 2021

Evaluating GNE Myopathy Gene Therapy: Movement towards a Biomarker

Dr. Kelly Crowe

June 11, 2021

Engineering a Gene Therapy for Monogenic Rare Disease

Rich Horgan

June 4, 2021

NDF-Sponsored GNE Research Projects

Dr. Angela Lek

Warm thank you to our corporate sponsor the Rotary Club, Beverly Hills