September 25, 2020
GNE Myopathy: Two Decades of Progress – Much Accomplished, Much Still to Do
Dr. Nuria Carrillo
September 11, 2020
Building the Tools to Develop and Optimize a Gene Therapy Program for GNE myopathy
Dr. Paul Martin
August 28, 2020
Progress Towards Developing a Cure for GNE Myopathy: Building a Strong Program Toward Achieving a Common Goal
Dr. Carmen Bertoni
August 21, 2020
Development of therapy for GNE Myopathy: Possibilities and Global Access
Dr. Alok Bhattacharya
August 14, 2020
It’s All About Function: The Role of Physical Therapy in the Functional Management of People with Neuromuscular Disease
Patrick Tierney, MPT, PT
August 7, 2020
Adaptive Devices to Increase Independence in Everyday Life with GNEM
Amy Curran & Tara Voogel
July 31, 2020
Exploring Intimacy & Physical Connection for GNEM Patients and their Partners
Dr. Gretchen Kubacky
July 24, 2020
From Personal Trauma to Triumph: Lessons on overcoming emotional and physical limitations
Dr. Sepideh Tabibian
July 17, 2020
Assistive Technologies for people living with GNEM
Imad Kazim & Magesh Ghiware
June 26, 2020
Research Update on Collected GNEM Patient Samples
Dr. Monkol Lek & Katherine Koczwara
June 19, 2020
Multidisciplinary Clinics (virtual and in-person) for GNE myopathy
Dr. Tahseen Mozaffar & Carol Gelbard, LCSW
June 12, 2020
NN109-MaGiNE* trial: Background and updates in the time of COVID-19
David Klements
June 5, 2020
From Gene to Therapy: Challenges in GNE Myopathy – The need for animal models
Dr. Stella Mitrani-Rosenbaum
May 15, 2020
Moving Towards a Biomarker for GNE Myopathy Gene Therapy
Dr. Kelly Crowe
May 8, 2020
Exploring the Potential of Gene Editing as a Therapeutic in GNE Myopathy
Dr. Monkol Lek & Dr. Angela Lek
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