Rachel Leib, Author at Neuromuscular Disease Foundation

About Rachel Leib

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So far Rachel Leib has created 51 blog entries.

Using Her Rare Disease Diagnosis to Fuel Patient Advocacy – Tara Voogel Steps into Her Role on The Board of The Neuromuscular Disease Foundation

Rachel Leib2023-02-10T07:47:17-08:00February 9, 2023|

Rare Disease Day 2023: A Celebration of The Promise for a More Equitable Society

Rachel Leib2023-02-10T07:43:00-08:00February 8, 2023|

‘I live a beautiful life’: What wheelchair users wish you knew – and what to stop asking

Rachel Leib2023-02-04T08:49:54-08:00February 4, 2023|

Neuromuscular Disease Foundation’s Dr. Kelly Crowe Presented with $20,000 Research Grant from Uplifting Athletes

Rachel Leib2023-01-14T20:09:34-08:00January 14, 2023|

NDF’s Secret Weapon in Raising GNEM Awareness Is a Team of Motivated Young Professionals Who Are Leading the Way to A Healthier Tomorrow Through Genetic Screening Advocacy

Rachel Leib2022-11-30T16:46:53-08:00November 30, 2022|

Accessibility: Where are we still falling short? Where can accommodations for disabled persons be improved?

Rachel Leib2022-11-23T08:34:13-08:00November 20, 2022|

The Beverly Hills Rotary Club Renewed its Support of The Neuromuscular Disease Foundation

Rachel Leib2022-10-14T05:26:07-07:00October 13, 2022|

Rich Horgan Talks Gene Therapy, How He Feels about Egos in the Lab, and Guiding NDF to the Head of the Pack in Developing a Cure for GNEM

Rachel Leib2022-10-12T08:38:56-07:00October 11, 2022|

NDF’s Research Program (IGTDP) Moves Closer to a Cure for GNE Myopathy (GNEM)

Rachel Leib2023-02-04T08:30:32-08:00September 9, 2022|

Family Planning? Have You Considered Genetic Screening?

Rachel Leib2022-09-09T15:58:01-07:00August 22, 2022|

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