The NDF Welcomes Geoffrey M. Gee, Esq. as Newly Appointed Executive Director
The Neuromuscular Disease Foundation (NDF) announced that its Board of Directors has appointed Geoffrey Gee, Esq. as Executive Director, effective January 1st, 2022. He [...]
Rare Leader: Geoffrey Gee, Executive Director, Neuromuscular Disease Foundation
A recent interview with NDF's new Executive Director Geoffrey Gee by Global Genes. Disease focus: GNE myopathy is a rare, inherited disease that causes [...]
NDF Takes the Lead in Global Race to Develop Gene Therapy Treatment for GNEM
The Neuromuscular Disease Foundation (also known as NDF) has garnered global attention by making notable advancements in their ambitious plan that was announced in late [...]
Why Rare Disease Day is So Important to the Neuromuscular Disease Foundation
The Neuromuscular Disease Foundation (NDF) celebrates Rare Disease Day with its mission to improve treatment and opportunity for the 300 million people worldwide living with [...]
Rushabh Desai Talks About the Struggles of Living with Rare Muscular Disease GNEM
By Dana Corddry Imagine living in a culture where the stigma of having a physical disorder were still very much present. Or where society [...]
THE HIDDEN CHALLENGES FACED BY DISABLED TEACHERS
Determined to lift the lid on disability, teacher Valenee Gosine discusses the impact of her GNE Myopathy diagnosis upon her profession with Karen Olney. There’s a resounding [...]
The Philosophy of Giving: We Talk with Longtime Board Member and Serial Philanthropist David Haverim about Generosity and The Future of NDF
By Dana Corddry I was fortunate to speak with David Haverim, successful businessman and Board member of the Neuromuscular Disease Foundation (NDF) recently, about [...]
Allman Builders: Changing Spaces & Renovating Lives
By Dana Corddry Our home is our sanctuary. After a hard day, we can come home and curl up in a warm blanket, watch [...]
Beverly Hills Non-Profit NDF Leads The Way In Finding A Cure For Rare Genetic Disease GNE Myopathy (GNEM)
If you’ve never heard the term “GNE Myopathy,” or “GNEM” before, you aren’t alone. For decades, this very rare disease that exists in races [...]
New Plans for Human Dosing in GNE Myopathy Trial
There are now plans in place to study a gene therapy for GNE myopathy (GNEM), with human dosing expected to begin in 24 months. [...]
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