News, Articles and Webinars
July 29, 2026 – Understanding Clinical Trials: What to Expect as a Participant
May 2026 – Therapeutic Update in GNE Myopathy by Dr. T. Mozaffar
Celebrating Female Scientific Achievement with One of Our Own: NDF Scientist Dr. Kelly Crowe Awarded $20K Grant and Named an Uplifting Athletes 2023 Young Investigator Draft Pick!
This Women’s Day, we’re proudly celebrating our own Dr. Kelly Crowe, a member of the NDF research team. While we could celebrate Dr. Crowe [...]
In-the-News: Suma Rao-Gupta, Izabella Tyszler and Navid Rachman to Join the Neuromuscular Disease Foundation (NDF) Board of Directors
The NDF board is pleased to welcome three new members: Suma Rao-Gupta, Izabella Tyszler and Navid Rachman. All three professionals bring a cumulative wealth [...]
Using Her Rare Disease Diagnosis to Fuel Patient Advocacy – Tara Voogel Steps into Her Role on The Board of The Neuromuscular Disease Foundation
"To be kind, compassionate, and of service so I may not... be ashamed to die until I have won some victory for humanity." - [...]
Rare Disease Day 2023: A Celebration of The Promise for a More Equitable Society
Each year at the NDF, we take part in celebrating Rare Disease Day, an opportunity to advocate for rare diseases as a human rights [...]
‘I live a beautiful life’: What wheelchair users wish you knew – and what to stop asking
"What's wrong with you?" "How did this happen?" People in wheelchairs encounter those questions regularly – and want people to know they are not OK to [...]
Neuromuscular Disease Foundation’s Dr. Kelly Crowe Presented with $20,000 Research Grant from Uplifting Athletes
Dr. Kelly Crowe is among 10 rare disease researchers to be awarded a grant at Uplifting Athletes’ Sixth Annual Young Investigator Draft presented by [...]
NDF’s Secret Weapon in Raising GNEM Awareness Is a Team of Motivated Young Professionals Who Are Leading the Way to A Healthier Tomorrow Through Genetic Screening Advocacy
The community of GNEM (GNE Myopathy) patients and families we are happy to support at NDF have long understood the unique challenges of advancing [...]
Accessibility: Where are we still falling short? Where can accommodations for disabled persons be improved?
“Staff were huffing and puffing whilst I held up their all-important drinks cart and told me that ‘in 27 years of working on airlines, [...]
The Beverly Hills Rotary Club Renewed its Support of The Neuromuscular Disease Foundation
On Monday, September 30, 2022, NDF’s Executive Director Geoffrey Gee, and NDF’s Emotional Wellness Director Carol Gelbard were invited to The Beverly Hills Hotel [...]
Rich Horgan Talks Gene Therapy, How He Feels about Egos in the Lab, and Guiding NDF to the Head of the Pack in Developing a Cure for GNEM
In 2020, The Neuromuscular Disease Foundation made history when it announced an ambitious plan to achieve the IND (Investigational New Drug) approval stage of [...]
