Life with GNEM: Voices from around the World Lift the Veil on the Patient Experience – Part 2 Rachel Leib2022-08-17T12:40:25-07:00August 17, 2022|
Media Messaging on Inter-abled Relationships: What Are We Saying to The Disabled Community? Rachel Leib2022-07-25T12:03:49-07:00July 24, 2022|
Life with GNEM: Voices from around the World Lift the Veil on the Patient Experience – Part 1 Rachel Leib2022-08-17T12:38:33-07:00July 14, 2022|
Breaking News for Rare Disease Patients – NDF among 85 Rare Disease Advocacy Groups Urging Senate to Include RARE Act in New Legislation! Rachel Leib2022-07-04T01:18:42-07:00June 24, 2022|
Consciously Shifting the Dynamic of Patient Storytelling Rachel Leib2022-07-04T01:18:14-07:00June 2, 2022|
Sure, You’ve Heard About GNEM. But Do You Know About the Bulgarian Variant? Rachel Leib2023-02-04T08:30:08-08:00May 26, 2022|
GNE Myopathy – Will Today’s Patients See a Treatment That Will End GNEM in Our Lifetime? Rachel Leib2023-02-04T08:31:43-08:00May 18, 2022|
Motherhood Reflections: Exploring Our Journeys & Fostering Emotional Wellness For Ourselves & Our Families With Neuromuscular Disease Foundation’s Emotional Wellness Director Carol Gelbard, LCSW Rachel Leib2023-02-04T08:32:14-08:00May 4, 2022|