Allman Builders: Changing Spaces & Renovating Lives
By Dana Corddry Our home is our sanctuary. After a hard day, we can come home and curl up in a warm blanket, watch [...]
Beverly Hills Non-Profit NDF Leads The Way In Finding A Cure For Rare Genetic Disease GNE Myopathy (GNEM)
If you’ve never heard the term “GNE Myopathy,” or “GNEM” before, you aren’t alone. For decades, this very rare disease that exists in races [...]
New Plans for Human Dosing in GNE Myopathy Trial
There are now plans in place to study a gene therapy for GNE myopathy (GNEM), with human dosing expected to begin in 24 months. [...]
Mum of Four Children Living with Disabling Rare Neuromuscular Disease GNEM Raises Awareness for Foundation Aiming to Find A Cure
Raising multiple children under the most routine circumstances is a herculean feat. Raising multiple children who are living with disabilities qualifies as next level [...]
2021 Q4 Newsletter
Get the latest updates from our CEO, see what we've been up to, and hear about what we've got coming up next in our [...]
A home video revealed: The successful fashion photographer has a rare muscle disease.
MAC, Smashbox, Bobby Brown, Natasha Danone, jewelry designer Keren Wolf, Oded Kashi, Ada Lazorgen, fashion designer Gershon Bram and other leading lifestyle brands choose Ayelet [...]
2021 Q3 Newsletter
Get the latest updates from our CEO, see what we've been up to, and hear about what we've got coming up next in our [...]
GNE Myopathy patient Kam Redlawsk honored with 2021 Rare Impact Award
Congratulations to GNEM patient Kam for receiving NORD's 2021 Rare Impact Award. This prestigious award is given to advocates who make an impact on [...]
2021 Q2 Newsletter
Get the latest updates from our CEO, see what we've been up to, and hear about what we've got coming up next in our [...]
“Business Owners With Disabilities: Stronger Together”
Keep reading to find out how Kevin a GNEM patient has grown his thriving dog boarding business in the face of adversity and how [...]
